What a title, right?
This was our daughters diagnosis in March of this year. It has completely turned our world upside down. We take things one day at a time and can tell you approximately our plans for the next two weeks. Anything past two weeks is a gamble because she's so fragile.
She earned the high risk part because after her first phase of treatment leukemia remained. Now that we are at a new hospital, we learned that Lulu should have been treated as high risk from the start. It's a difference of professional opinion, I guess. As parents you just want the best for your child and we're very happy to be in the hands of new doctors.
Why am I sharing this info?
I began sewing when Lulu was a baby. I wanted to make cloth diaper covers for her. They were turing out pretty nice and to support my new sewing hobby I decided to start selling them. As Lulu got older my sewing projects changed. I moved on from diaper covers to snack bags. Things have changed once again, so I'll be adding more products. I will also be sharing what has helped keep her comfortable while battling leukemia.
I'm a parent. I knew NOTHING about leukemia until it smashed into our lives on March 3,2014. Science and pharmaceutical meds intimidate me. Nurturing, cooking, and sewing are my strong points. I need to focus on what I can do. I'll try and share along the way so that it can help others. This blog has been super helpful when Lulu was done with her 32 days in the hospital and ready to come home. It's helpful to have a parent resource.
Lulu should be waking up soon, time to get morning medicine ready.
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